Sometimes we need information specific to a diagnosis. Below is a list of some orgs that we recommend for different disorders.
Autism in Black is a neurodivergent-led organization uniquely dedicated to serving the Black autistic community. We go beyond general advocacy—our lived experience allows us to bridge the gap between awareness and action, providing culturally responsive education, empowerment, and support that reduces harm.
Since 1965, the Autism Society of America, and our affiliate network, connects people to the resources they need through education, advocacy, resources, and community programming.
The Cerebral Palsy Foundation is dedicated to finding a cure for cerebral palsy.
A world where cerebral palsy is preventable, treatable, and curable, with individuals living fulfilling lives empowered by inclusive systems, groundbreaking research, and equal access to care. We envision a global community united in transforming the future for people with cerebral palsy.
The Ehlers-Danlos Society is a global organization dedicated to advancing and accelerating research and education in Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD).
To empower individuals with Down syndrome and their families by driving policy change, providing resources, engaging with local communities, and shifting public perceptions.
Database for resources and information regarding rare disabilities/disorders.
Understood is the leading nonprofit empowering the 70 million people with learning and thinking differences in the United States.
Did you know CADC’s Behavior Supports and Individual & Caregiver Workshops are fully covered by the DD Waiver? Explore our services to learn how you can access expert guidance and transformative training at no cost to you!